We held our annual patients conference on the 1st & 2nd June in Edinburgh. It was wonderful to see so many patients, carers and their families turn out for our event, with the number of attendees reaching 80.

Our attendees travelled to Edinburgh from all over Europe and the UK including Denmark, Ireland, Wales and the South of England. We had guest speakers from the UK, Dr. Kassim Javaid from Oxford and Dr. Zilla Huma from London and we also had Professor Hamish Simpson from Edinburgh and Dr. Line Caes from Stirling. It was great to also welcome Gillian, Layla and Leigh from Kyowa Kirin, who sponsored the event.

Fantastic presentations were delivered throughout the weekend by both doctors and patients. There was a wide range of topics covered including Endocrine Issues, Hypnotherapy for Pain Management, Scoliosis in FD, Surgical challenges in FD and New drugs, bisphosphonates and their side effects. The attendees were also given an update on the Rudy study.

We were very fortunate to be able to offer 30 private family/patient consultations with Dr. Collins, Dr. Malone and Dr. Stanton from the USA along with Dr. Javaid and Dr. Huma from the UK.

A number of presentations are available on our website by clicking here.

You can download and read the conference agenda’s for each day below:

We include a number of conference photos also: View conference photo gallery