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Youtube Links
YouTube Links
A selection of YouTube videos provided which will increase in time.
We hope to have our own YouTube channel in the future and any video contributions related to Fibrous Dysplasia and McCune-Albright will be warmly received.
FD Foundation Patient and Family Conference 2014
This is one of fifteen videos recorded by the Fibrous Dysplasia Foundation at the 2014 Patient and Family Conference. It was held at the NYU Langone Medical Center, New York, NY on October 25-26, 2014.
Rudy Study
Rudy is a study in Rare diseases. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient driven research.
FDSSUK Youtube Channel
We now have our own YouTube channel and any video contributions related to Fibrous Dysplasia and McCune-Albright Syndrome will be warmly received.