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AGM Meetings & Minutes

FDSS AGM Meetings and Minutes

These minutes are provided for reference and are summaries of the meetings held at each of the conferences held between 2009 and 2016 where they are available.

Previous FDSS Meetings

We have provided a list of all the previous conferences and venues held with dates here for reference. The orange icons with a down arrow reveal more information for each event.

  • Fibrous Dysplasia Support Society Annual Meeting 2019

    Held Saturday/Sunday 1st/2nd June 2019 at The John McIntyre Conference Centre, Pollock Halls, 18 Holyrood Park Road, Edinburgh EH16 5AY


    Presentations by:-


    • Dr. Z. Huma & Dr. F. Ahmed
    • Dr Michael Collins, Chief of Skeletal Studies at the National Institute for Health 
    • Dr. R. Stanton
    • Professor. H. Simpson
    • Dr. Lina Caes
    • Robert Cameron
    • Dr M K Javaid, Consultant in Metabolic Medicine
    • Stephen McMurray
    • Vic Bullock
    • Nish Rai
  • Fibrous Dysplasia Support Society Annual Meeting 2018

    Held Saturday/Sunday 17 November 2018 at Birmingham Childrens Hospital, Steelhous Lane, Birmingham B4 6NH


    Meeting Agenda (PDF)


    Presentations by:-

    • Professor Nick Shaw Consultant Paediatric Endocrinologist
    • Dr M K Javaid, Consultant in Metabolic Medicine
    • Dr. Ahmed, Consultant Ear, Nose and Throat & Skull Base Surgeon
    • Dr. Abbott Craniofacial Ophthalmic Consultant Surgeon
    • Jane Freebody Specialist Physiotherapist at The Oxford Neuromuscular Service at The John Radcliffe Hospital
  • Fibrous Dysplasia Support Society Annual Meeting 2017

    Held Saturday/Sunday 18/19 November 2017 at Birmingham Childrens Hospital, Steelhous Lane, Birmingham B4 6NH


    Presentations by:- 

    • Dr M K Javaid, Consultant in Metabolic Medicine, Rheumatology
    • Professor Nick Shaw Consultant Paediatric Endocrinologist
    • Dr Michael Collins, Chief of Skeletal  Studies at the National Institute for Health
    • Dr Alison Boyce, Paediatric Endocrinologist at The Childrens Medical Centre, Washington DC
  • Fibrous Dysplasia Support Society Annual Meeting 2016

    Held Saturday 8th October 2016 at Holiday Inn Express. Birmingham NEC,Bickenhall Parkway, Birmingham, B40 1QA


    Presentations by:-

    • Professor Nick Shaw Consultant Paediatric Endocrinologist.
  • Fibrous Dysplasia Support Society Annual Meeting 2015

    Held Saturday 3rd October 2015 at the Nuffield Orthopaedic Centre, Lecture Theatre, Windmill Road, Headington, Oxford, OX3 7HE


    Presentations by:-

    • Dr M K Javaid, Consultant in Metabolic Medicine, Rheumatology
    • Dr Michael Collins, Chief of Skeletal  Studies at the National Institute for Health
    • Dr Alison Boyce, Paediatric Endocrinologist at The Childrens Medical Centre, Washington DC. 

    You can download the Agenda and the questionnaire asked of all attendees.

  • Fibrous Dysplasia Support Society Annual Meeting 2014

    Held Saturday 11th October 2014 at the Nuffield Orthopaedic Centre, Lecture Theatre, Windmill Road,Headington, Oxford, OX3 7HE


    Presentation by:-

    • Dr Kassim Javaid MBBS, BMedSci, MRCP, PhD University Lecturer in Metabolic Bone Disease
  • Fibrous Dysplasia Support Society Annual Meeting 2013

    Held Saturday 19th October 2013 at the  Royal National Orthopaedic Hospital (RNOH), Seminar Room 1, Brockley Hill, Stanmore, Middlesex, HA7 4LP.


    Presentation by:-

    • Dr Paul Arundel, Consultant in Paediatric Metabolic Bone Disease, Sheffield Children’s Hospital 
  • Fibrous Dysplasia Support Society Annual Meeting 2012

    Held Saturday 13th October 2012 at the  Royal National Orthopaedic Hospital (RNOH), Seminar Room 1, Brockley Hill, Stanmore, Middlesex, HA7 4LP.


    Presentation by:-

    • Professor Briggs, Consultant Orthopaedic Surgeon & Director of Strategy & External Affairs
  • Fibrous Dysplasia Support Society Annual Meeting 2011

    Held Saturday 22nd October 2011 at the  Royal National Orthopaedic Hospital (RNOH), Seminar Room 1, Brockley Hill, Stanmore, Middlesex, HA7 4LP.


    Presentations by:-

    •  Mr R Bhumbra and FDSS Members. 

    You can download the Agenda.

  • Fibrous Dysplasia Support Society Annual Meeting 2010

    Held Saturday 16th October 2010 at the Royal National Orthopaedic Hospital (RNOH), Seminar Room 1, Brockley Hill, Stanmore, Middlesex, HA7 4LP.


    Presentations by:-

    • Dr A Jago-Brown, Dr Richard Keen and FDSS members.   

    You can download the Agenda.

  • Fibrous Dysplasia Support Society Annual Meeting 2009

    Held Saturday 31st October 2009 at Holiday Inn Express. Birmingham NEC,Bickenhall Parkway, Birmingham, B40 1QA

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