Registered charity Fibrous Dysplasia Support Society

IMPORTANT: THE FIBROUS DYSPLASIA SUPPORT SOCIETY (FDSS) does not make any medical recommendations. Its members are FD sufferers or carers who have no medical qualification, just their own anecdotal experiences and knowledge which is shared for support purposes. Any information provided by FDSS must therefore be treated as just information, not medical advice. No action should be taken as a result of any information provided or implied by FDSS without first seeking qualified and thorough medical advice. Click here for full Medical Information Disclaimer.

McCune-Albright Syndrome

McCune–Albright syndrome (MAS) is a complex genetic disorder affecting the bone, skin and endocrine systems. It was first described in 1937 by American pediatrician Donovan James McCune and American endocrinologist Fuller Albright.

What is MAS?
Fibrous Dysplasia

Fibrous dysplasia (FD) is a bone disease characterized by areas of abnormal growth or lesions in one, several, or many bones. FD can occur in any bone. The skull is frequently affected as are legs, arms, and ribs.

What is FD?
What is FDSSUK?

The Fibrous Dysplasia Support Society was formed in 2007 by a group of patients and their carers who are affected by Fibrous Dysplasia (FD), McCune Albright Syndrome (MAS).

FDSSUK History
Mission Statement

Raising awareness and supporting the Fibrous Dysplasia and McCune Albright community

Vision, Mission and Aims
Our Vision

Supporting a better future for Fibrous Dysplasia and McCune Albright Syndrome patients

Vision, Mission and Aims
News

Global collaboration launches the International Consortium for Fibrous Dysplasia and McCune-
Albright Syndrome. See News for more information.

Educational Animation Video created - to assist in the understanding of the complexities surrounding FD / MAS. See current news for details.

Vitamin D and some recommendations that have been provided to FDSUK which may be of use to all our FD & MAS members available - see ticker feed link or latest news.

FDSSUK MASKUP fundraising campaing continues as we continue provide support to the Government COVID-19 guidance on protecting each other.

News