Meetings and Events

FDSSUK Annual Conference, 1st/2nd June 2019

We are pleased to announce that the FDSSUK Annual Conference will run for two days this year and it promises to be packed full of information to help patients and family/friends understand and deal with Fibrous Dysplasia and McCune Albright Syndrome. The event is taking place on Saturday 1st and Sunday 2nd June at The John McIntyre Conference Centre at Edinburgh University.

Your tickets can be ordered via Eventbrite via this link.

FDSSUK welcomes three leading doctors from the US:

Dr Michael Collins – Endocrinologist, Chief of Skeletal Studies at the National Institute for Health, Bethesda, MD, USA

Dr Robert Stanton – Orthopaedic Specialist at Nemours Children's Hospital, 13535 Nemours Pkwy, Orlando, FL, USA

Dr Jason Malone   Orthopaedic Surgeon at Nemours Children's Hospital, 13535 Nemours Pkwy, Orlando, FL, USA

All three doctors will be presenting along with UK Specialists with focus on different topics for either day. More details regarding the presentation topics for Saturday and Sunday will follow with a detailed agenda.

The Drs have agreed to carry out a clinic where you can have a private one to one consultation with them. If you would like to have one of these sessions, please let us know as soon as possible on the eventbrite form and by emailing These sessions will run alongside the conference on both days and will be time slot allocated.

All tickets include lunch. Please let us know if you have any dietary or accessibility requirements.

There are various types of accommodation available on site and there is a discount code that you can use to obtain 15% off the price when booking online, if you are attending the event. Details of the accommodation can be found here. The discount code is EVENT.

Free parking is available on site and the venue is fully accessible.

For any further information or queries please contact

We hope you can make it.

Fibrous Dysplasia Support Society Annual Meeting, 17th November 2018

Photo taken during FDSSUK's AGM 2018

Click for bigger image.

This year's annual meeting was held on Saturday 17th November at Birmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH.

Click here for notes on the meeting,

and here for a few comments from our Facebook Page
(for those who don't have a Facebook Account).

18/19 November 2017. Fibrous Dysplasia Support Society Annual Conference

This highly successful meeting attracted participants from America, Italy, Spain, Ireland, Israel, Wales, Scotland and, of course, England. It was lovely to meet some of you over the weekend, and we hope you felt it was worthwhile. Several presentations were delivered throughout the weekend, and 33 family/patient consultations were arranged with Drs Collins, Boyce and Stanton. The success of the meeting can be gauged by the large number of appreciative comments we have received, some of which are listed here.

Dr Collins asked for the following message to be posted to all those who attended the meeting:

Dear FDSSUK meeting attendees,
Jamie (Watson) has passed on to me your gratitude for my attending your meeting. I would like to say that it was a privilege to share, what has to a large extent been my life's work, with such an amazing group of people. I think I speak for all the doctors when I say that we found you to be an amazing group of people – the strength, resilience, and love the patients, families, and loved ones have for each other was on clear display and nothing short of inspirational! It was an honour to be part of such an amazing and successful event.
       Sincerely,  Michael Collins

8th October 2016. Fibrous Dysplasia Support Society AGM (Minutes | Medical Notes)

Presentation given by Prof Nick Shaw on 'Fibrous Dysplasia in Children'

3rd October 2015. Fibrous Dysplasia Support Society AGM
Presentations were given by Alison Boyce and Michael Collins on:
'Endocrine Features of FD/MAS', 'Pain in Fibrous Dysplasia'
'Craniofacial FD' and 'Surgical Management of FD'.

11th October 2014. Fibrous Dysplasia Support Society AGM (Minutes)

19th October 2013. Fibrous Dysplasia Support Society AGM (Minutes)

13th October 2012. Fibrous Dysplasia Support Society AGM (Minutes)

22nd October 2011. Fibrous Dysplasia Support Society AGM (Minutes)

16th October 2010. Fibrous Dysplasia Support Society AGM (Minutes)

31st October 2009. Fibrous Dysplasia Support Society AGM (Minutes)