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Medical Professional Information Resources
The FDSS website is using medical information provided by the Fibrous Dysplasia Foundation (FDF) of America. We would like to thank the FDF for all the help and support they have given, and continue to give, us since 2007.New Paragraph
FDSSUK have produced a number of support publications that are available for download: Support Publications
Articles
General
- McCune-Albright syndrome • PDF
- Pathophysiology and medical treatment of pain in fibrous dysplasia of bone • PDF
- Fibrous Dysplasia. Pathophysiology, Evaluation, and Treatment • PDF
- Long term outcome of optic nerve encasement and optic nerve decompression in patients with Fibrous Dysplasia: Risk factors for blindness and safety of observation • PDF
Skeletal
- The surgical management of fibrous dysplasia of bone • PDF
- Fibrous Dysplasia of the proximal part of the femur • PDF
- Fracture Incidence in Polyostotic Fibrous Dysplasia and the McCune-Albright Syndrome • PDF
- The Correlation of Specific Orthopaedic Features of Polyostotic Fibrous Dysplasia with Functional Outcome Scores in Children • PDF
Drug Studies
Other
- My Rare Disease Does Not Define Who I Am • Website
- These shoes were made for walking: Lauren Ruotolo • Website
- Delivering hope and options for people with rare diseases in 2021 - Lord Sharkey • Website
- The importance of Vitamin D - provided by Diana Ovejero Crespo • PDF
Article accepted by the Journal of Oral and Maxillofacial Surgery - 1 April 2016
'Fibrous Dysplasia and medication-related osteonecrosis of the jaw', by Tarek Metwally, Andrea Burke, Jeffrey Y. Tsai, Michael T. Collins, Alison M. Boyce. View PDF