FDSSUK BREAKING NEWS
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Archived News 2020
14/11//2020
FDSSUK Trustee Vacancies
Is there anyone who may wish to put themselves forward as a potential Trustee within the FDSSUK ? We are always open to requests of interest and look for those volunteers who can bring experience and expertise to help us move the charity forward. Anyone who may want to put themselves forward for a Trustee post as well as the position of the Chair should contact the Secretary via the link below. The previous Chair has stood down and that post is vacant so the FDSSUK is currently canvassing for a replacement.
Email Secretary at:- stacy.richardson@fdssuk.org.uk
10/10/2020
FDSSUK MASKUP Fundraising Campaign
We are pleased to announce that we have secured availability of FDSSUK Logo'd face masks. These are available in both adult and children sizes for supporters who wish to help promote awareness of the charity as well as helping protect each other in line with current Government requirements to wear a face covering.
Full details available here
including photo's on how to acquire one whilst supporting our charity at the same time !
08/08/2020
FDSSUK Summer Newsletter 2020 available !
We are pleased to announce that the latest newsletter packed with lots of valuable news and information is available. Read it under the newsletters section or open it here.
24/04/2020
COVID-19: Should I start taking vitamin D?
An interesting article from the BBC relating to potential benefits of taking vitamin D has been made available. For the full article please click here.
25/03/2020
COVID-19 Important update for people with rare bone disorders now available !
Some of you may have received letters about being someone who’s extremely vulnerable to COVID-19. If you have not received a letter, please read the important information that has been provided by the FDSSUK Medical Advisory Board ( MAB ) which is available here
and follow any of the guidance that may be applicable.
23/03/2020
GOV.UK COVID-19: Guidance on Shielding
The UK Government has provided information for shielding and protecting people defined on medical grounds as extremely vulnerable from COVID-19. Full details for information are available here.
18/03/2020
Coronavirus and FD/ MAS update 18th March 2020
The Medical Advisory Board has forwarded important information to the charity relating specifically to Coronavirus and FD/MAS which we are able to share with you here. As new information relating to the virus and the impact on FD/MAS becomes available we will inform you as soon as it has been provided through our social media channels.
09/03/2020
FDSSUK's response to the Transition Bill Consultation
The full response to the Transition Bill is provided here. (The full 49 Pages Response)
22/01/2020
FD and MAS Global Awareness Week
We are excited to announce the Fibrous Dysplasia & McCune-Albrights Syndrome (FD/MAS) Global Awareness Week including our plans to celebrate the occasion whilst raising awareness internationally of the condition. During this week, fundraising events will take place internationally hosted by organisations supporting FD/MAS in countries such as USA, Spain, Italy, France and others. We are pleased to share the information regarding our fundraising event with you all.